Many of the technical and medical terms used in porphyria are confusing. To assist you, important terms are displayed like this. Provided your browser is compatible (you may also have to enable scripts to run on your browser), moving your mouse cursor over such a hotlink without clicking will display a brief explanation of the term.


Clicking on the small images on most pages will open a larger version, which is in most instances annotated and more explanatory. Use the BACK button to return to where you were.

Internal Links

Click on any link to open cross-referenced pages in our site. Use the BACK button to return to where you were.

Professionals Section

You are currently in the PATIENTS' SECTION. Be sure to visit the PROFESSIONALS' SECTION as well. This contains:

  • the same information, but in the detail and using the terminology required for doctors and other health professionals.
  • but in addition, many more pages of information about the management of porphyria under different circumstances, such as pregnancy and the treatment of different medical disorders in people with porphyria.


The intention of this website is to provide patients and health care professionals with the information to make informed choices about the management of porphyria. It is not intended as a substitute for personal consultation between patient and doctor. All medical management relating to the care of porphyria must take place under the supervision of the patient's own doctor. The authors accept no responsibility for any error, difference of opinion or any adverse consequences arising from or occasioned by the use of information published on this website.